Fw: Our experience with DMSA and Autism
- Subject: Fw: Our experience with DMSA and Autism
- Date: Mon, 24 Apr 2000 19:52:17 -0400
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----- Original Message -----
From: Lyn Redwood <tlredwood>
To: <Autism-mercury>
Sent: Monday, April 24, 2000 7:49 PM
Subject: Fw: Our experience with DMSA and Autism
----- Original Message -----
From: <KCessna>
To: <tlredwood>
Sent: Monday, April 24, 2000 6:50 PM
Subject: Fwd: Our experience with DMSA and Autism
--- Begin Message --- From: KCessna Subject: Our experience with DMSA and Autism Date: Mon, 24 Apr 2000 18:50:05 EDT Full-name: KCessna To: ESOLLINGER Dear Ed,
Lyn Redwood (Mercury-Autism list) asked me to email you with our experience
using DMSA on our 4 year old autistic son, Hunter, who has Mercury Poisoning.
We have been chelating his heavy metals for around 9 months now using DMSA.
When we did our initial Chemet Challenge our sons Mercury levels were off the
chart, something like 30 on a scale of 0-3. We have gotten them down to half
that. It does take a while. But I can tell you that after each chelation we
see major changes in our son. He is no longer looking past us. You can see
that when he looks at you he is "there" and looking back at you. He has not
started to talk again yet, but we are hopeful that when we get rid of ALL his
mercury overdose that we will get something along those lines.
We are lucky because in the town we live (Baton Rouge, Louisiana) we have a
compounding pharmacist. She was able to make the Chemet (DMSA) capsules into
suppositories for us. Maybe you will be able to find a pharmacist like that.
I hear that the smell of the DMSA is equal to feces so trying to get your 2
year old to eat one may not be easy. One of my friends opens her child's
capsule and mixes it with a little water and squirts it into her sons mouth
with a syringe, one alternative.
The side effects we see when on Chemet include fatigue. Our son does not
talk and I really think he cannot localize his pain so he cant indicate to us
that he has an ache or pain anywhere. I have spoken to an adult with mercury
poisoning and she told me that when she is on DMPS that her whole body aches,
her joints, her muscles etc and she feels ill and weak. I keep this in mind
when Hunter is on it and give him extra time to sleep and get himself
together to go to school etc. I have even kept him home on the days he is
being chelated. The first 6 times we were on Chemet it was like clockwork
that 3 days after we stopped Hunter got really sick. Fever, fatigue and
crying. We started giving him extra vitamin C (2000 mg 3 times a day) than
we had been normally giving him and the next two times he did not get sick.
I think he needs the extra antioxidants to help him get over all the extra
free radicals that were produced or that he was unable to get rid of since
his body was working on detoxing his mercury (just a personal theory). Also,
his bottom (anus) gets very sore while we are on Chemet. But, he also has
constant acid diarrhea so its sore most of the time. In fact, I have 9
Chemet suppositories in the refrigerator that I am waiting to use when his
bottom gets a bit better from last weeks round of acid diarrhea. It was
really bad for some unknown reason last week (5 a day for several days).
I also noticed that when we did a Secretin infusion a week after we did the
Chemet we saw good improvement in his awareness and ability to do new things.
I felt that it was a greater improvement than when we did Chemet by itself.
We have done Secretin right after Chemet the last two times. Which was also
when we increased his Vit C. We do so many things at once that it is hard to
extrapolate which ones are being the most effective. But as long as stuff IS
working we dont want to stop and do only one thing at a time.
It is great that you have found out so early that your daughter has mercury
poisoning. Now that we have Hunter's Hg overload identified I look back at
his medical records and see signs that he has had it probably since he was
very young. Hypotonia, malformed blood cells, anemia, etc. I only wish we
knew about it then so we could have started getting it out of his poor brain
sooner.
FYI: Hunter is on the Gluten & Casein free diet and we do ABA with him at
home, he gets the TEAACH method at school (self contained class with 4
students, a teach, an aide and a volunteer)
This is what supplements we are giving him:
Vitamin C 2000 mg 2-3 times a day
Reduced Glutethione 75 mg twice a day,
CO Q10 30 mg once a day,
MSM 500 mg twice a day
DMG 125 mg 2-3 times a day
Folic Acid 800 mcg once a day
Calicum Citrate 300 mg 1-2 times a day
` Magnesium 200 mg once a day (at night)
Multigenic Multivitamin 1/2 a tablet once a day
Flax Seed Oil 1tsp once a day
Cod Liver Oil 1/2 tsp once a day (not to exceed
5000 units per day total from all sources)
Acidophillus or Culterelle 1 capsule 3-4 times a day
Homeostatic Soil Organisms 1/4 capsule once a day
Juice Plus-Vegtable or other "Green food" 1 cap a day
Colostrum Gold 1 tsp twice a day
For three weeks to help pull Mercury he was given:
Selenium 200 mg once a day
To help with his digestion we give him:
Creon 10 mg with every meal
SerenAid 1 capsule with every meal (this is a
new enzyme developed by Klaire Labs that breaks down all protein peptide
chains into the individual amino acids, thus preventing these peptides from
leaking into the blood stream and causing morphine like substances to go to
the brain = opiod excess theory)
To help him get to sleep we give him:
Melatonin 3 mg an hour before bedtime
He also took this one for 2 months: (I forget why now, ugh)
Niacin with Inositol 250 mg once a day
Before and after the Chemet for several weeks he is given:
Zinc 50 mg once a day
Also, to help with Yeast Overgrowth in his gut we give him Nystatin daily and
have also done the others listed:
Nystatin Powder 1/4tsp twice a day (we did this for 5
months have stopped now)
Diflucan 1 tsp once a day (for one week)
Amphotericin-B 100 mg 4 times a day (for 10 days)
I feel like this really worked the time we did it if we go by the
hyperactivity he experienced during the die-off period.
Nizoral 1/4 pill once a day for 8 days (we just
finished this one earlier this month)
And lastly, because his Amino Acid Analysis came back low in several
essential amino acids we give him 1 tsp of the Amino Acid Powder we purchased
from MetaMetrix Clinical Laboratories who make up the powder according to
their test results. (actually we havent done this one for 2 months cause we
were out of the powder and have not reordered it yet, ugh)
I hope this information was helpful.
Sincerely,
Stephanie Cessna
Baton Rouge, Lousiana
KCESSNA
225-274-0976
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